FOREVER 9

Today is Ryan Mott’s birthday. He should be turning 10 but last year he lost his battle to cancer. Ryan had something called DIPG. Diffuse intrinsic pontine gliomas (DIPG) are highly aggressive and difficult to treat brain tumors found at the base of the brain….

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LILY’S BIRTHDAY

Yesterday my family celebrated a little girl’s birthday that we all know and love. The celebration included balloons, dinner out, sharing photos of the birthday girl when she was a chunky little monkey, listening to the birthday girl’s favorite song, eating her favorite cake, wearing…

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PICTURE PERFECT

Like every event and experience, each person walked away from our Stardust Ball with a different takeaway. Many left in awe of this amazing event and all that FGP accomplishes every day including pulling off an event of this size while still being a small…

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THE WOMEN BEHIND THE BALL

For the last 3 years the group pictured here has been the core group behind the ball. We have other volunteers who help, too and we appreciate all of them so very much. This group of women shows up to every meeting and serves a…

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ANOTHER SCHOOL YEAR TO FACE BY COURTNEY HARRIS

In rolls another September and with that comes the excitement, for most families, of their children heading back to school. And then there are those families who have to face another milestone without their beloved child. Back to School is one of the most difficult…

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THE HELD FAMILY

This is the Journey of Lillian (and the entire Held family) as told by her mom, Tina. Since May 2014 the Held Family has been standing strong with Lillian, the 5th of Brian and Tina’s 6 children as she battled AEL – a rare subform…

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DAVID

Disclaimer: This is from my point of view. I do not speak for any other part of my family, just myself. -Austin Pearson When you’re a 15 year old girl your main concerns are probably going to be about boys, what friends are going to…

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MEET THE THIBODEAU FAMILY – WRITTEN BY SHANE

“How do you get back up, when the blow rocks you to the core? How do you keep a family together in the face of a tragedy? How do you live, when life is not the same? We found the answers to these questions within…

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MEET THE DOLVINS (IN KAREN’S WORDS)

So, when I was initially faced with the task of describing our family, I came up empty. I mean, after all, who has time to just sit around contemplating the nature of their family, right? But if I had to come up with one word…

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NAMING OUR PROGRAM FUNDED BY THE LILY FUND

We have spent over a year brainstorming what to name our program that supports our families as they face end of life and beyond that was inspired by Lily. We have tossed names around and a few ideas that I thought were good were vetoed…

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